Rachel was diagnosed with Aicardi syndrome, a rare genetic malformation syndrome where part of the brain fails to form. Aicardi syndrome causes developmental delay, intellectual disability and frequent epileptic seizures. Rachel's quality of life has improved since neurosurgeons at Children's implanted a vagus nerve stimulation (VNS) device to reduce seizures. | Children's Minnesota
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3 months after doing in depth genetic testing, Leo was diagnosed with Aicardi-Goutieres Syndrome, a rare genetic disorder that affects the brain, spinal cord and immune system. There are only 400 cases known in the world. Leo’s diagnosis affects almost every aspect of his daily life, including the way he moves, sees, eats, and communicates. With everything that Leo faces, he encourages us to look for the positive in each day and to enjoy the ride. Visit the link below to join us in shouting love
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🦋💜🦋Aicardi Syndrome Awareness Day🦋💜🦋 ~This Saturday at Habanero’s ~ This Saturday, we’ll be celebrating something very close to our hearts; Aicardi Syndrome Awareness Day. Our beautiful daughter, Blessing, lives with Aicardi Syndrome; a rare neurological condition that affects mostly girls and reminds us every single day to find joy in the simple things. 🌈🦋 In her honor, we’re serving up Purple Margaritas for just $5 all day long 💜🍹 Come raise a glass, share a smile, and help us spread
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